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    Default Twevice

    Don't know if a thread like this is started somewhere deep within Tweleve.

    There are times I would like advice from some of you who have experienced things that I need input on.

    Here is what I am looking for.

    Found out that my son has acute mono. He is 16 and I have the low down on the obvious from the doc and his nurse.

    Not looking for sympathy here as I feel a whole lot better just knowing for sure what the prob was and is. I would like anyone out there that is willing to just offer some heads up info that I may need.

    Thanks to all.

    And a special thanks to my friends on tweleve that have been supporting me while things were getting hairy on this side of the keyboard. When your kid is sick I think it is def 'the worst'! Thanks again peeps!!!!
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    You're in for a long ride, I'm afraid. Mono can linger for weeks, or in the case of my friend, months. No matter how much her parents thought she should have the energy to do simple things like sit up, she just didn't. Scared them to death, but in the end, she was okay. It seemed like everything was an assault to her system - light, sound, laughter, food. Though not an expert at all, I'd highly recommend letting your son call the shots re: recovery. It's a wicked bug!

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    http://www.webmd.com/a-to-z-guides/I...Topic-Overview

    this should give you a better overview in print that should help you understand a lil better how to deal with it and make the patient comfortable
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    ((((((((twelevepeeps)))))))))

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    Gigi had it too...years ago...think she was 12, maybe thirteen...lost a lot of school and very high fevers, scared us so bad...took many months till she was back to "normal".....the residual was she could no longer do gymnastics...the spleen enlarges and the doc didn't want her swinging on the bars, for fear it would burst....it def took the wind out of her for a long long time....BUT...look at her now.....hang in g/f..



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    Thanks ((((((((((peeps))))))))))!

    I knew I could count on you.

    My son is NOT ready to sit and do nothing. He has been hounding me all day to go out and work on his bike. Constantly replacing wheels,frames, parts of frames and I keep saying no.

    It took some doing to get the doctor to actually look at him as more than just a cold case. When the doc finally laid him down on the table and checked his liver and spleen I could see the immediate facial change in him (the doc). And he has lost almost 15 days of school so far. So I won't be accepting any work for awhile now. The school will be very accommodating. He can start back on a very short schedule. Go in late and stay for just a few hours at first. As long as we have documentation from the doc the state won't hound us about his attendance I am told. And after the ear beating (sweetly ofc) that I gave the doc I don't think that will be a prob.

    I feel so badly that my son has to give up the one thing that he loves. BMX extreme riding. Don't ya just hate to see your kids sad and sick. It is truly the 'wurst'!

    Thanks again to everyone!!!

    Jean
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    YES!! it was so hard for gigi to stop gymnastics ...cause she was real good and was 2nd place all city with the program we have here....the thing that scared me the most was how much weight the little thing lost so fast...but we got thru it and as i say...this to shall pass... Hang in babe!



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    Hey, Jean...just letting you know I'm there too, if you need me. I've gone through Non-hodgkins Lymphoma--so I know what a blow it is to have your whole world just stop dead in its tracks for a while. BUT...it gets better. Mono is a lot less harmful in the long run!

    This would be a great opportunity to get your son into puzzles--games--intellectual pursuits--if he's willing. Right now, he probably isn't, but as the weeks stretch out and he gets restless, he might be.

    When my oldest was 6, he got pneumonia. This was a kid who never sat still...and suddenly he couldn't do anything without coughing so hard he would faint. We had him hospitalized so he could recover with oxygen in the room...it only took a few days and he was a lot better. When I went to visit him, he had taken his bathrobe belt and made it into a swing. tied to the hopsital bed, and was playing "tarzan" ! Kids recover so well and even when you think you're losing them, rally to show you who's boss!!

    Hugs to both of you, honey...
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    Oh Boy Mimi! That is what has been a worry for me lately. He turned 16 in July. Just before he got sick he was 6'3" and 150lbs. He has lost about 10 lbs. I worry about him being so tall and thin. With the spleen and liver enlarged he doesn't have mush cushion for ANY bumps. I'm getting to be that overbearing mom that's constantly saying take it easy, take it easy. Oh Well!!!! He's gonna just have to deal. Too flippin bad. Gorsh darnit! He WILL make it thru this w/o additional probs if my mouth has anything to do with it. LOL!!!!

    Thank you for the info.

    Jean
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    ~Joseph Campbell

    There are three kinds of people : Those who can count and those that can't.




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    Thank you too Christin!!! It's good to have all the support. We should be two lumps this coming week. Dad needs to travel to Mexico again and will be gone for most of it. So it's gonna be microwave time. Making lots of food today and tomorrow to do just that. Picked up two new PS2 games for him. One is very hard and he has my competitive, everyone should be able to do this attitude. So YES! Throwing some challenging things his way to keep him busy. I think it's time to bring out the old Mario/Donkey Kong/Banjo-Tooie games and throw out the challenge.

    I also have to behave around him. Last night we were both laughing so hard his sides started aching. I felt bad - but still hold the thought that laughter and positive attitudes will help this healing process.

    Thank you again!

    Jean
    ***********************
    We must be willing to get rid of the life we’ve planned, so as to have the life that is waiting for us.
    ~Joseph Campbell

    There are three kinds of people : Those who can count and those that can't.




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    Oh, boy....I remember when my spleen was enlarged. I had a really hard time getting comfortable. It's right under your left rib cage and it just aches so much--you can't sit for any length of time, you're too tired to stand, you can't lay on that side 'cos it's like laying on a knife.

    I know exactly how he feels.

    I got myself two of those big long body pillows--the 4-foot long ones--the softest ones I could find. And I padded my bed long ways with them, so when I rolled over in the night I didn't wake up from pain. It helped to have the extra padding in the bed, because you just want to relax and you can't relax if you're in pain.

    I was very lucky, though--after the first chemo treatment with monoclonal antibodies, the spleen shrunk (in two hours!!!) from the size of a football to almost its normal size--that of a pickle.

    That was a big relief.

    So just hang in there---pain will take its toll but a sense of humor is good to have during something like this.

    {{{jean}}}
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    CK or as they say in Spain, "Yes, What?"

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